my mood of the day...My Unkymood Punkymood (Unkymoods)

Saturday, November 18, 2006

i have a disorder.

just thought i'd let anyone interested know that i have been diagnosed with trigeminal neuralgia just the other day. i found some info on the disorder...thought i'd share.

TN (Trigeminal Neuralgia / tic douloureux) is a disorder of the fifth cranial (trigeminal) nerve that causes episodes of intense, stabbing, electric shock-like pain in the areas of the face where the branches of the nerve are distributed - lips, eyes, nose, scalp, forehead, upper jaw, and lower jaw. By many, it's called the "suicide disease". A less common form of the disorder called "Atypical Trigeminal Neuralgia" may cause less intense, constant, dull burning or aching pain, sometimes with occasional electric shock-like stabs. Both forms of the disorder most often affect one side of the face, but some patients experience pain at different times on both sides. Something as simple and routine as brushing the teeth, putting on makeup or even a slight breeze can trigger an attack, resulting in sheer agony for the individual.

Trigeminal neuralgia (TN) is not fatal, but it is universally considered to be the most painful affliction known to medical practice. Initial treatment of TN is usually by means of anti-convulsant drugs, such as Tegretol or Neurontin. Some anti-depressant drugs also have significant pain relieving effects. Should medication be ineffective or if it produces undesirable side effects, neurosurgical procedures are available to relieve pressure on the nerve or to reduce nerve sensitivity. Some patients report having reduced or relieved pain by means of alternative medical therapies such as acupuncture, chiropractic adjustment, self-hypnosis or meditation.

Needless to say, I'm not happy about this...understatement of course. i was told that i may never have another episode again, but i may have several...you never know. let's hope for the best.

1 Comments:

At 11:02 AM, Anonymous Anonymous said...

Hi Su,

I just read your blog, and wanted you to know that I feel your pain. I have TN also. Medications are vital, but taking care of yourself is SO important. If you can relieve stress and find "me" time in whatever way is right for you, that can make such a difference. Reading a good book, watching a movie, taking a long walk, etc. is what works for me.

Best of luck,

Shari in Illinois

 

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